Jon Hastie has Duchenne – a severe form of Muscular Dystrophy typified by rapid, progressive muscle degeneration.
Prognosis –paralysis, 24/7 ventilation and early death.
Time is precious, desperately precious.
Jon has lived a comparatively good life and now decides to travel around the UK and Holland to visit a number of amazing Duchenners who have carved out remarkable lives for themselves despite this most crippling of disabilities.
A Life Worth Living: Pushing the Limits of Duchenne is no ordinary road movie. It is a fun, inspiring, poignant and surprising rock 'n' roll journey that takes us into the lives of guys who, against all the odds show us just how valuable life is.
The film is more than an inspiring encouragement to a younger Duchenne generation and their parents, it affirms – for all of us – that life is to be treasured and lived to the full.
Studio: Anecdote Films
Directed & Produced by Annie Perkins
Executive Producers: Jon Hastie & David Hastie
Editor: Rinku Kalsy
Camera/DOP/producer: Kevin Augello
Sound/camera: Oli Cohen
Production Manager/Stills/Third Camera: Christina Jansen
Music: Robert Wingfield
Sound Design: Rob van de Schootbrugge
Graphics: Kevin Stahl & Chris Potako
Branding & Logo: Chris Lewis
