"Caregivers Need Care, Too: Exploring The Impact of Rare Disease on All Members of the Family," addresses the self-care needs of families affected by NF, including neurofibromatosis and schwannomatosis.
Presented by Kasey Rangan, MSN
NF Summit 2024
What is the Children's Tumor Foundation?
Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.
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