JT von Seggern is holding a vial of protoporphyrin solution, the substance found in the blood of a person with EPP. For this experiment, Jasmin Barman, PhD, extracted the protoporphyrin from the blood of someone with EPP and put it into the solution. The entire blood of a person with EPP does also glow, but it is not visible without a special microscope because the red blood color (the heme) blocks the visible florencense. So, for a person with EPP, when they are exposed to visible light, their blood starts to glow and results in internal 2nd degree burns on the inside of their veins causing excruciating pain.

Horrific to even contemplate, imagine what it is like to experience every time you are exposed to visible light.

*Experiment performed by Dr. Jasmin Barman, PhD,
*Assisted by EPP patient Jt Von Seggren

свернуть