Our precious baby girl, Lebone, was diagnosed with Trisomy 18 after she came into our lives. Trisomy 18, also known as Edwards syndrome, brings challenges affecting various parts of the body and causes developmental delays. While it's considered a life-limiting condition, we've chosen to embrace every moment with her.
During pregnancy, we opted not to undergo genetic testing. For us, termination was never an option, and we wanted to cherish the journey without unnecessary worries. We firmly believe in the sanctity of life and that each child is crafted by a loving Creator with a purpose.
Learning about Lebone's diagnosis filled us with fear. The doctors painted a bleak picture, warning us not to expect much and preparing us for the worst. The possibility of losing our baby shook us to our core.
Yet, Lebone has shown incredible strength. Despite spending 45 days in the NICU, she's now home where she belongs. Her sisters adore her, and our hearts overflow with love for her. This journey has taught us to trust in the Lord's plan, knowing that He has good intentions for us and for Lebone.
In the midst of uncertainty, we've witnessed God's guiding hand and find solace in the belief that He's writing our story, and it will be beautiful.
If you are facing a similar diagnosis and would like to connect with us, email us on info.themakhs@gmail.com❤️
#trisomy18 #geneticdisorder #edwardsyndrome
